According to the October study, among patients diagnosed with breast, prostate, lung, or colorectal cancer from 2004 to 2016, those with private insurance were more likely to receive surgical care at high-volume hospitals than patients who were uninsured or had Medicare or Medicaid.
Despite this disparity, the researchers say that after the Affordable Care Act (ACA) was enacted in 2010, the odds of receiving care at a high-volume hospital increased for colorectal patients who were uninsured or had Medicaid.
In contrast, low-volume hospitals don’t regularly perform these procedures, leading to a lack of experience among the surgeon and the hospital. For this reason, research has linked low-volume hospitals to increased mortality and complication rates from surgery.
“At the moment, our greatest concern is the fate of the Affordable Care Act,” Joanna Fawzy Morales, Esq, a cancer rights attorney and CEO of Triage Cancer, tells Verywell. “While not perfect, the ACA provides crucial protections for people in the cancer community.”
How the ACA Improved Access to Health Care
The ACA provides greater healthcare access for uninsured people and people who have Medicare or Medicaid. According to the Kaiser Family Foundation (KFF), there are several improvements attributable to the ACA:
In 2019, the number of uninsured people was significantly lower than it was in 2010. Health insurance companies can no longer deny people with preexisting conditions, such as cancer, from enrolling in coverage. The ACA also mandates that all major medical plans offer ten essential benefits to ensure high-quality care, including maternity care, preventative services, and prescription drug coverage.
Despite these accomplishments, however, the ACA hasn’t managed to solve all healthcare access issues.
Millions of People Still Lack Access to High-Quality Care
According to KFF, in 2019, 28.9 million people in the U.S. were uninsured. Fast forward to 2020, and the current COVID-19 pandemic only further compounds this problem.
“Many people (more than 50%) have health insurance related to their employer, [and] with job loss comes insurance loss,” Jan K. Carney, MD, MPH, professor of Medicine and associate dean for Public Health at the University of Vermont Larner College of Medicine, tells Verywell.
Before the COVID-19 pandemic, six out of 10 uninsured people were eligible for financial assistance through Medicaid expansion under the ACA. However, as of 2020, only 37 states (including Washington D.C.) have opted for this expansion. Therefore, millions of people continue to go without health insurance due to high premium costs and a lack of financial assistance from their respective state governments.
In short, having health insurance is a vital step towards accessing high-quality health care. However, even those who are insured may face barriers in regards to healthcare access.
Other Barriers to Accessing Health Care
“There are many reasons why people do not have access to different types of health care, both primary and specialty care,” Carney says. A few of those reasons include access to transportation and geographic location, she says.
For example, a patient may have Medicare but may not have the transportation to go to a high-volume hospital for surgery. Therefore, they may feel obligated to go to the nearest hospital in their area, even though this hospital may lack the experience needed to perform this patient’s specific surgery.
For lower-income patients who have Medicaid, making decisions regarding surgery may prove even more challenging.
“They may not have access to paid sick leave, so taking time off for doctors’ appointments, surgery, and recovery, means not getting paid and likely losing their jobs,” Morales says. Her nonprofit organization, Triage Cancer, provides education on practical and legal issues that affect patients diagnosed with cancer and their caregivers.
These issues include helping patients understand health insurance so that they avoid getting trapped in a web of confusion.
Patient Education May Improve Access
According to Morales, “access to care can depend on understanding how health insurance works.”
She says that many people don’t know that most health insurance companies are required to provide coverage for many services, including:
Preventative servicesSecond opinions regarding a diagnosisRoutine costs of care during a clinical trial
Morales adds that people are likely to forgo these potentially life-saving benefits due to the perceived cost. “Many people do not know that they may have multiple options, how to make choices between those options, or how to use their policies to their maximum potential,” she says.
Having an understanding of health insurance is crucial not only for physical health but also for financial health.
“Not having an understanding of networks, and choosing the wrong provider can lead to astronomical out of pocket costs," she says. “So even if people are able to access care, they may end up paying too much and in financial ruin.”
Health insurance is a complicated matter and can carry implications regarding the care you receive, as the study suggests. Healthcare reform continues to evolve in the U.S. Still, in the meantime, you can educate yourself on how your insurance plan works, or what resources are available in your state to afford health insurance coverage.
